The following posts from the ROP list provide information regarding research and ophthalmologists with special interests. The ROP list was moderated by Dr. Scott Richards until August, 2002. The list has closed now. For more information about lists of interest to people with visual impairments, please visit the email list index.
Date: June 23, 1998
From: Helen Harrison
Several weeks ago I asked for permission to copy and send posts about vision in adults with ROP,as well as the emotional and practical issues facing adults with ROP, etc. to Dr. William Silverman and to the Blind Babies Foundation in San Francisco (and on to other parents and physicians who have an interest in ROP.)
Pam, Sarah, and Jody gave their permission for me to use their posts. As I have collected their posts ( and I'm still working on it slowly but surely) I find that posts from some of the rest of you make an important contribution to the issues Pam, Sarah, and Jody are discussing. I would like to ask some of the rest of you who were part of the discussions for your permission to use your posts as well. If you wish, all identifying material (last names, e-mail addresses, etc.) can be removed. I will try to contact each one of you off the list in the next few days for your specific permission.
In the meantime, Dr. Silverman has seen a preview of the posts by Sarah, Pam and Jody and he is greatly interested and deeply moved by the issues under discussion. He suggests that I pass along the following information:
"You may want to tell the ROP group that Burt Kushner* and John Flynn** are ophthalmologists with a special interest in the long term changes in the eyes of adults with a history of ROP."
Burton J. Kushner, MDDate: April 10, 2000
From: Helen Harrison
The STOP-ROP study results were presented by Dale Phelps at "Hot Topics in Neonatology" (December 1999) and were published in _Pediatrics_ in February 2000. The use of higher oxygen levels did not make significant improvements in ROP outcomes overall, but did manage to reach significance in the subset of children who did not have plus disease. (These children required less in the way of ROP-related surgery.) On the other hand, the increased O2 levels used in the study also caused a significant increase in BPD and other "adverse pulmonary events."
Helen